Contreras Publishes Article Critiquing NIH Policy on Genomic Data Sharing

January 24, 2015 — Jorge Contreras, Associate Professor at the University of Utah S.J. Quinney College of Law,  has published an article in the journal Trends in Genetics analyzing and critiquing the new National Institutes of Health (NIH) policy on Genomic Data Sharing (GDS).  The policy, which goes into effect this month, covers all forms of genetic data generated by NIH-funded research.  Historically, NIH required researchers to release genomic data to public repositories shortly after its generation. Diverging from prior policies, the new GDS policy permits data to be held back by investigators for lengthy periods while they analyze and prepare publications relating to this data.  The GDS policy also introduces comprehensive informed consent requirements for future research using genomic data acquired from human subjects.